Moonlight Monday- COTBDAA Awareness & Fundraiser
2024-05-06 11:00 - 21:00 (America/Denver) | Moonlight Pizza and BrewPub, 242 F St, Salida, CO, 81201, United States
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Great food…Great people…Great cause!
Join us May 6, 2024!
On Moonlight Monday, Moonlight Pizza and Brewpub donates 10% of their daily sales to community organizations.
May 6, 2024, COTBDAA is scheduled to be the grateful recipients of Moonlight Monday donations.
This fundraiser is part of Lyme & Other TBD/Conditions Awareness Month! Proclamations by Chaffee County Commissioners and Colorado Governor, Jared Polis!
Whether you chose to dine in or take out on May 6th….join us in “Biting Back” against Lyme & Other Tick-Borne Diseases/Conditions! Following this kick-off event, community members and others are encouraged to donate directly to COTBDAA for the following two weeks!
Drop by our COTBDAA table on May 6th between 5-7 pm to pick up tick-bite prevention education for resources…and get your FREE (and really cool) tick-check reminder sticker for your water bottle or car! Also register for some amazing tick-bite prevention giveaways from our community partners!
*Monies raised help support Chaffee County community education and awareness resources and activities!
COTBDAA has been the grateful recipient of Moonlight Monday donations in 2017, 2018 & 2019, 2020, 2021, 2022, 2023, and now 2024! Thank you Moonlight for your ongoing support…and thank you to our community!

Film Screening and Community Conversation: The Quiet Epidemic – Buena Vista
2024-05-08 14:00 - 16:30 | Stardust Theater, 16450 Co Rd 306, Buena Vista, CO, 81211, United States
Share this content: Join us for a community conversation and film screening of the award-winning documentary The Quiet Epidemic. The film features a young girl from Brooklyn and a scientist from Duke University both diagnosed with chronic Lyme disease, a disease said to not exist. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research and buried documents reveal why tick-borne diseases have been allowed to quietly spread around the globe.
Monica White, President/Co-Founder of Colorado Tick-Borne Disease Awareness Association will be available for community conversation following the film screening. Light snacks will be served. This event is FREE! No registration necessary. Donations are accepted and free popcorn is served!
In collaboration with Chaffee County Public Health’s Age Strong Film Club! Colorado Tick-Borne Disease Awareness Association. Resource table will be available with education and prevention information from COTBDAA as well as Community Partners: InsectShield, Sawyer, IGeneX, Ravel Heath & Soul Tribe Yoga Collective.

May Lyme & TBD Awareness Month Meditation & Yoga!
2024-05-11 14:00 - 15:30 | Full Circle Yoga, 372 Main Street, Longmont, CO, 80501, United States
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Join Us for Lyme & Tick-Borne Diseases Awareness Month Events and Activities with Our Community Partners at Soul Tribe Yoga Collective!
Lyme Disease Awareness Month Meditation Challenge!
This challenge is meant to be attainable and accessible all, including those who are new to meditation. Join Milena from Soul Tribe Yoga Collective on Fridays at 11 AM (MT) to meditate together via Zoom. Each meditation lasts for 25 minutes including a 5-minute guided element followed by 20 minutes of silent meditation with guidance and support.
Lyme & tick-borne disease patients in all time zones, as well as their caregivers, friends, and family, are welcome to join this challenge. Donations in any amount are accepted however there is no cost to participate.
Malas for Lyme Disease Awareness Month!
Milena from Soul Tribe Yoga Collective is hand-making bespoke malas designed in the theme of Lyme Disease Awareness Month for tick-borne disease patients, caregivers, advocates, and other champions in the fight against Lyme disease. All proceeds benefit the Soul Tribe Yoga Scholarship Fund so students experiencing significant financial hardship can access community through yoga. Each mala is made with 108 beautiful gemstone beads complete with a unique guru bead and tassel and can be customized to your preferences. Cost of materials varies based on preferences, average $40.
May 11: Gentle Yoga Gathering, Virtual & In-Person
In collaboration with our community partners at Soul Tribe Yoga, we will gather on Saturday, May 11th at 2 PM (MT) for a gentle yoga practice. Don’t miss out on this special event! The class will be an All Levels Gentle Yoga Class with a focus on subtle postures, intentional movements, breathwork, and meditation.
Participants based in Northern Colorado are welcome to join the in-person element of this special donation-based yoga class at Full Circle Yoga in Longmont, CO. **Please note the studio has stairs. Community members based in other parts of the country/world or those without physical accessibility to the in-person event can join the session via Zoom. Suggested donation is $30, however donations in any amount will be accepted so that this special session is accessible to all.
A resource table will be available at the in-person location with education and prevention information from COTBDAA, as well as our Community Partners that support awareness, prevention, and patient support year-round: InsectShield, Sawyer, IGeneX, Ravel Heath & Soul Tribe Yoga Collective
For more information, registration for events, participation waivers, and mala ordering, please visit Soul Tribe Yoga Collective here. Milena is happy to answer any questions! milena@soultribeyc.com
(970) 444-2120
*ALL proceeds from the May Awareness activities benefit the Soul Tribe Yoga Scholarship Fund so that students with tick-borne diseases and conditions experiencing significant financial hardship can access community through yoga. *COTBDAA does not provide medical advice. Please consult your medical provider before making any decisions about diagnosis or treatment.

The Quiet Epidemic #MakeLymeLoud Campaign
2025-01-21 - 2025-01-31 | Virtual Event
Share this content:January 21-31: Let’s #MakeLymeLoud, 50 years after Lyme was first recognized in the U.S.
IT’S LIVE: #MakeLymeLoud Email Campaign Jan. 21 – 31!
We’ve entered a pivotal year for Lyme disease advocacy – 2025 marks 50 years since
Lyme disease was first recognized in the U.S. The Quiet Epidemic (TQE) impact team
has launched a community-wide outreach campaign to educate the new Administration.
From January 21 to 31, this #MakeLymeLoud campaign page will be LIVE with a
pre-written letter for President Trump. The goal is to inform him about the growing threat
of Lyme and tick-borne diseases and encourage support for key initiatives to prioritize
solving this public health crisis.
If you want to make an impact for Lyme disease, this is a quick, simple, and free way to
make your voice heard. With a change in administration and momentum from recent
TQE events on Capitol Hill, this opportunity won’t come again. We need all hands on
deck.
Now that the campaign page is live, you can:
1. Send a Letter to President Trump (< 60 seconds)
2. Share the Call to Action by encouraging your family, colleagues, and friends to send
a letter (5 min)
3. Stay Engaged by spending five minutes a day, for ten days, amplifying the campaign
and recruiting your community to do the same (50 min)
Beyond educating the new Administration, the goal is to unite and elevate the Lyme
community. With your help, we will #MakeLymeLoud in 2025 in partnership with
LymeLight Foundation, Global Lyme Alliance, Project Lyme, NatCapLyme, LymeLnk,
Center for Lyme Action, Bay Area Lyme Foundation, Mothers Against Lyme,
LymeDisease.org, Generation Lyme, Colorado Tick-Borne Disease Awareness Association, and 20 additional organizations
across the country.

Center for Lyme Action: Information Session for 2025 Virtual Lyme Fly-in
2025-01-22 15:00 - 16:00 | Virtual Event
Share this content:INFORMATION SESSION FOR 2025 VIRTUAL LYME FLY-IN
January 22, 2025 3:00PM MT
Join us for an informational session about the Center for Lyme Action 2025 Virtual Fly-In event! Our info session will cover everything you need to know about advocating for Lyme and tick-borne diseases with your members of Congress and their staff at our upcoming event. We will provide an overview of the Virtual Fly-In event followed by a Q&A.
The event will be recorded. Q&A questions may be submitted ahead of the event to info@centerforlymeaction.org Register here.

Tick-Borne Diseases & Associated Illnesses: National Community Engagement Initiative
2025-01-28 11:00 - 14:30 | Virtual Event
Share this content:Tick-Borne Disease and Associated Illnesses Virtual Community Engagement Session: Diagnosis: Spotlight on Special Populations
Date: January 28th, 2025
Time: 1:00 pm – 4:15 pm Eastern Time
Location: Virtual, register to attend
Draft Agenda: Available on https://www.hhs.gov/oidp/initiatives/tick-borne-diseases-associated-illnesses-national-community-engagement-initiative/index.html
Meeting Goal: Join us for an informative session designed to engage interested participants on the diagnostic challenges that special populations face with tick-borne diseases and associated illnesses (e.g., Alpha-gal Syndrome).
Meeting Objectives:

Validate the detrimental effects of missed or delayed diagnoses on the lives of patients and their loved ones.
Provide updates on new developments in diagnostic technologies.
Educate the audience about the nuances and obstacles of diagnosing tick-borne diseases and associated illnesses in special populations.
Furnish information to help healthcare providers recognize, diagnose, and promptly treat tick-borne diseases and associated illnesses, particularly in special populations.

* Please note that time may not allow for asking all questions individually. Frequently asked questions will be consolidated and asked as a single question.
For more information go to: https://www.hhs.gov/oidp/initiatives/tick-borne-diseases-associated-illnesses-national-community-engagement-initiative/index.html
For any questions regarding meeting logistics, please contact Maria Kowal at maria.kowal@roseliassociates.com
For any technical questions, please contact Mike Kavounis at mike.kavounis@roseliassociates.com

Center for Lyme Action 2025 Virtual Fly-In
2025-02-18 - 2025-02-19 | Zoom Virtual Event
Share this content:On February 18-19, 2025 Center for Lyme Action will host its annual Virtual Fly-In to connect advocates with their Members of Congress. Last year more than 400 advocates registered for more than 250 meetings with Congress Members.
REGISTER HERE!
A fly-in is an advocacy event where participants from across the United States meet with the DC staff of their elected Representatives and Senators to advocate for increases in federal funding for Lyme disease. Occasionally the Members make themselves available for the meetings. In addition to the Fly-in meetings we will hold a preparation session and a training session. See the agendas below.
AGENDA
Tuesday February 18, 2025
3:00pm ET – 5:00pm ET

Introductions and Agenda
Remarks from U.S. Representatives and U.S. Senators
Lyme Appropriations Requests Review
Online Platform Logistics Overview
Expert Panel Remarks
Lyme Champion Awards

Wednesday February 19, 2025
9:00am – 5:00pm ET

Virtual Fly-in Meetings with Congress Members
All meetings will be scheduled to accommodate time zones.
Each attendee will be scheduled on average 3 30-minutes meetings.

TRAININGS
Monday February 10, 2025
8:00 – 9:00pm ET / 5:00 – 6:00pm PT
Storytelling Workshop for advocates

Hosted by Generation Lyme
Optional workshop for all advocates
Learn to share effective personal stories

Wednesday February 12, 2025
3:00pm ET – 4:30pm ET / 12:00pm PT – 1:30pm PT
Fly-in 101 Training for new advocates and those who would like additional training

Talking Points for FY26 Appropriations and Legislation
Online Platform Logistics Overview
Essentials for Effective Advocacy
Practice Session and Role Play
Additional Preparation Steps

Thursday February 13, 2024
4:00pm ET – 5:00pm ET / 1:00pm PT – 2:00pm PT
Fast Track Training for experienced advocates

Talking Points for FY26 Appropriations and Legislation
Online Platform Logistics Overview
Essentials for Effective Advocacy
Practice Session and Role Play
Additional Preparation Steps

Thursday February 13, 2025
8:00pm ET – 9:00pm ET / 5:00pm PT – 6:00pm PT
Provider Training for healthcare providers

Talking Points for FY26 Appropriations and Legislation
Online Platform Logistics Overview
Essentials for Effective Advocacy
Practice Session and Role Play
Additional Preparation Steps

Center for Lyme Action Congressional Series
2025-05-06 08:00 - 17:00 | Dirksen Senate Office Building, G50 Dirksen Senate Office Building, Washington, DC, 20002, United States
Share this content:Lyme, Alpha-gal Syndrome, and other tick-borne diseases continue to pose serious public health challenges across the United States. Accurate and timely diagnostics are critical for effective treatment and prevention of long-term illness. This event will feature expert speakers who will provide key insights into the current state of diagnostic testing, emerging technologies, and policy opportunities to improve patient outcomes.
Event Details:
Topic: The Future of Lyme and Tick-borne Disease Diagnostics
Date: May 21, 2025
Time: 5:00 PM ET – 7:30 PM ET
Location: Senate Dirksen Office Building G50
Register Here
Register to Meet with Representatives (Optional)
Agenda:

Welcome
Opening Remarks by U.S. Senator Susan Collins (Maine)
Keynote: State of Lyme Disease Diagnostics Research – Nicole Bell, CEO Galaxy Diagnostics
Expert Panel: LymeX Phase IV finalists
Brandon Jutras, PhD, Associate Professor, Northwestern University
Mark Junewicz, Founder and CEO, Gnomx
Mary Ann Communale, EdD, MS, Associate Professor, Drexel University College of Medicine
Nicole Bell, CEO, Galaxy Diagnostics
Reception 6:30 – 7:30

This briefing will provide valuable information for policy staff working on health, science, appropriations, or related issues. Light refreshments will be provided.

NASEM: Charting a Path Toward New Treatments for Lyme Infection-Associated Chronic Illnesses - Report Launch Webinar
2025-05-09 09:00 - 10:00 | Zoom Virtual Event
Share this content:Please join us for a webinar to learn about this new National Academies’ report, Charting a Path Toward New Treatments for Lyme Infection-Associated Chronic Illnesses, on Friday, May 9, 2025. Members of the report authoring committee will discuss its key messages and recommendations and will answer questions from the audience about the report.

SmallTown for the Cause
2025-09-18 - 2025-09-20 | Riverside Park-Salida, CO, 170 E Sackett Ave., Salida, 81201, United States
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MUSIC. YOGA. COMMUNITY.
Smalltown for the Cause blends ethereal, soulful, and folk-driven music from world-renowned artists with rejuvenating yoga sessions led by top instructors. Engaging workshops offer everything from songwriting and meditation to instrument-making and regenerative farming, creating a weekend of music, movement, creativity, and growth.
Colorado Tick-Borne Disease Awareness Association is one of the grateful “causes” to be benefitting from this event!
Join us SEPTEMBER 19 & 20, 2025 (Early Camping September 18)…we will be there all weekend with an education tent filled with resources to keep you and your family safe from ticks and the diseases they can cause with a single bite. Stop by and see us for educational resources, prevention tools, and fantastic giveaways from our supportive Community Partners. A single bite can change a life!
Get passes here!

The Quiet Epidemic - A Documentary About Lyme Disease
2025-10-18 18:00 - 21:30 | Canyon Theater, Main Library, 1001 Arapahoe Ave., Boulder, 80302, United States
Share this content:Please join us for a screening of the award-winning Lyme documentary The Quiet Epidemic. The film will be followed by a short refreshment break, then a discussion and Q&A with Lyme experts.
This event is will be held at the the Boulder Public Library and hosted by Global Lyme Alliance Ambassador, Janelle Stover and Colorado Tick-Borne Disease Awareness Association. Please register with the QR code on flyer to attend this free event!
Runtime: 1h 52m
Please use the North Side Canyon Entrance if arriving after 5:00 p.m. Parking is available in both the Canyon and Arapahoe lots. To reach the theater from the Arapahoe lot, you can cross the creek using the exterior bridge.
