Colorado Tick-Borne Disease Awareness Association (COTBDAA)

Center For Lyme Action: Lyme Fly-in
2022-02-22 - 2022-02-23 | Center for Lyme Action, United States
Share this content: On February 22-23, 2022 Center for Lyme Action will host its annual Virtual Fly-In to connect advocates with their Members of Congress. Last year 250 advocates registered for more than 200 meetings with Congress Members. Visit Center for Lyme Action to view full agenda here.
REGISTER HERE

Dr. Daniel Cameron Presents Lyme, COVID and Vaccines: Patient Survey Discussion
2022-02-27 14:00 - 16:00 (America/Denver) | Meetup Virtual Event
Share this content: COTBDAA in partnership with Colorado Lyme & TBD Support Group will host Dr. Daniel Cameron for a virtual presentation followed by a Q&A on February 27, 2021 2-4 pm (MT).
Dr. Cameron will be speaking on “Lyme, COVID, & Vaccines: Patient Survey Discussion.”
Daniel Cameron, M.D. graduated from the University of Minnesota School of Medicine and their Department of Epidemiology. He completed residencies at both Beth Israel Medical Center and Mt. Sinai in New York City. Dr. Cameron has led International Lyme and Associated Diseases Society (ILADS) twice as their president. He is widely recognized as author of the ILADS practice guidelines, his Lyme disease science blogs and Inside Lyme Podcast. He is author of the book, Inside Lyme: An Experts Guide to the Science of Lyme Disease. He continues to see patients in his private practice in Mt. Kisco, New York.
Watch the recorded discussion with Dr. Daniel Cameron here
You may participate in Dr. Cameron’s Lyme Patient Survey here
Purchase a copy of “Inside Lyme: An Experts Guide to the Science of Lyme Disease” here
We thank our 2022 Community Partners for the support they provide in allowing us to bring these resources to the patient community!

*COTBDAA does not provide medical advice. Views and information shared by guest presenters and support group members is the sole responsibility of the individuals. Use of the COTBDAA website is for information only. Please consult your medical provider before making any decisions about diagnosis or treatment. COTBDAA does provide patient support and access to educational resources. Please do not hesitate to reach out!

Connecting~Learning~Healing: 3rd Annual Virtual Event
2022-05-22 14:00 - 16:30 | Meetup Virtual Event
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Connecting~Learning~Healing : 3rd Annual Virtual Event
In partnership, Colorado Tick-Borne Disease Awareness Association and Colorado Lyme & TBD Support group are promoting May, Lyme & Tick-Borne Disease Awareness Month with our 3rd Annual Connecting~Learning~Healing Virtual Event, Sunday, May 22, 2022.
We are honored to host two pioneers in the field of Lyme & other TBD diagnosis and treatment: Dr. Joseph Burrascano and Dr. Daniel Kinderlehrer.

Dr. Joseph Burrascano – Bartonella~Diagnosing & Treating This Stealth Infection
Dr. Daniel Kinderlehrer – A Toolkit for Promoting your Own Healing

THANK YOU!
Generous sponsorship has been provided by our Community Partners at IGenex, Inc., and Insect Shield, for this May Awareness event!
Support for COTBDAA education and prevention activities is provided year-round by all of our 2022 Community Partners.
This virtual event is FREE to attend, however space is limited and registration is required. The presentations have been recorded, watch HERE! *COTBDAA does not provide medical advice. Views and information shared by guest presenters and support group members is the sole responsibility of the individuals. Use of the COTBDAA website is for information only. Please consult your medical provider before making any decisions about diagnosis or treatment. COTBDAA does provide patient support and access to educational resources. Please do not hesitate to reach out!
Daniel Kinderlehrer, MD
Saturday May 22, 2022
2:15 pm-3:15 pm (MT)
A Toolkit for Promoting Your Own Healing
Daniel A. Kinderlehrer, MD is a nationally recognized physician with expertise in the fields of nutrition, allergy, environmental medicine, Lyme disease and the healing of mind-body-spirit as a unified whole. Dr. Kinderlehrer co-founded The New England Center for Holistic Medicine in Newbury MA, and has taught extensively, including practitioner training courses at The Omega Institute, The National Institute of Behavioral Medicine, the American Academy of Environmental Medicine, and the International Lyme and Associated Diseases Society. He created and organized the Lyme Fundamentals course which is presented annually at the International Lyme and Associated Diseases Society conferences. He is the author of many articles in medical journals and the Lyme Times. His integrated medical practice in Denver, CO focuses on the diagnosis and treatment of tick-borne illness. Dr. Kinderlehrer is the author of Recovery From Lyme Disease: The Integrative Medicine Guide to the Diagnosis and Treatment of Tick-Borne Illness, which was released in March, 2021.
Joseph Burrascano, MD
Saturday May 22, 2022
3:15 pm-4:15 pm (MT)
Bartonella – Diagnosing and Treating This Stealth Infection
Dr. Joe Burrascano is a well-recognized specialist in the diagnosis and treatment of Lyme disease and associated complex infectious diseases, and the chronic illnesses that accompany them. With over 35 years of research in this field, he has appeared in and on virtually every form of media, both in the US and abroad. He has testified before the US Senate and armed services joint subcommittee and at various governors’ consulates. He is also a founding member of ILADS and ILADS Educational Foundation.

CO Lyme & TBD Support Group: Open Forum Meeting with Nicole Malachowski
2022-10-16 14:00 - 16:00 | Meetup Virtual Event
Share this content: Cameras On!!!!
Join us as our guest, both patient and advocate, Nicole Malachowski kicks off our Open Forum Support Group Meeting!
As always, virtual support group meetings are free to attend. But you must register through Colorado Lyme & TBD Support Group Meetup here! *COTBDAA does not provide medical advice. Views and information shared by guest presenters and support group members is the sole responsibility of the individuals. Use of the COTBDAA website is for information only. Please consult your medical provider before making any decisions about diagnosis or treatment. COTBDAA does provide patient support and access to educational resources. Please do not hesitate to reach out!

CO Lyme & TBD Support Group-Open Forum Virtual Meet-up
2022-12-04 14:00 - 16:00 | Meetup Virtual Event
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Camera’s on for this open forum!
Please join us for an open forum that is open to patients and caregivers of Lyme & other tick-borne diseases/conditions. This forum allows you the community to share information, receive support, and connect with each other during this holiday season.
We ask that all practioniers who are not patients to please contact Jodi@coloradoticks.org prior to your RSVP.
This event is virtual, but we are planning additional in-person events in the future…so stay tuned!
We look forward to seeing you!
*Views discussed or shared within the Meetup Group, belong to the individuals and not that of COTBDAA or the Colorado Lyme & TBD support group.

Mothers Against Lyme Meetup
2023-01-02 18:00 - 19:00 | Meetup Virtual Event
Share this content: Mother Against Lyme is hosting their next virtual Support Group Meeting on January 2, 2023!
6:00 PM (MST), 8:00 PM (EST)
An opportunity to commiserate over the hardest moments, and celebrate our personal victories. And, most importantly, to clarify our goals for the coming year. January is reset-and-let’s-go-month. We are excited to kick it off together!

Register here

More from Mothers Against Lyme here

In-Person Support Group: Ari DePaola Presents Functional Recovery & Enhancement
2023-01-15 14:30 - 16:00 | Parker Library, 20105 Mainstreet, Parker, CO, 80134, United States
Share this content: In person support is BACK!!!
Join Colorado Lyme & TBD Support Group and Colorado Lyme Disease Awareness Association for our first in person support group meeting since 2020!
We are thrilled to welcome 2023 Community Partner, Ari DePaola, the founder of Functional Recovery & Enhancement (FRE) as our guest speaker.
Hear Ari’s story as she suffered her 17th concussion after a wakeboarding accident and was diagnosed with a severe TBI, Neurological Lyme disease, SIBO, and a number of autoimmune diseases. At one point Ari could barely walk, talk, or even hold a normal conversation. She saw more doctors than she could count, and for the first year of her healing journey, tried taking medications. These medications left her feeling worse. It was at this point that Ari took matters into her own hands. Instead of taking the hundreds of medications she was prescribed, Ari decided to figure out the root cause of her symptoms and a way to heal holistically without all of the complications and side-effects of prescription medications.
That’s when she founded Functional Recovery & Enhancement, or FRE for short, a “wellness on wheels” service offering IV Therapy, Hyperbaric Oxygen Therapy (HBOT), Infrared Sauna Therapy, Red Light Therapy, BEMER Therapy, and Ionic Foot Detox Therapy in the Denver-metro area. Join us as Ari shares her journey with Lyme and the modalities that worked for her to heal and how she is now ensuring this is available to those in the Denver Metro Area.

Register for this free in-person support group at Meetup here
Learn more about Ari and the services provided by FRE here!

*COTBDAA does not provide medical advice. Views and information shared by guest presenters and support group members is the sole responsibility of the individuals. Use of the COTBDAA site is for information only. Please consult your medical provider before making any decisions about diagnosis or treatment. COTBDAA does provide patient support and access to educational resources. Please do not hesitate to reach out!

Mothers Against Lyme Meetup
2023-01-16 18:00 - 19:00 | Meetup Virtual Event
Share this content: Mother Against Lyme is hosting their next virtual Support Group Meeting on Monday, January 16, 2023! 6:00 PM (MST), 8:00 PM (EST)
Join us for another Mother’s Meet Up! You are not alone! Please pass the meeting information along to anyone else who may benefit from joining us.

Register here

More from Mothers Against Lyme here

Mothers Against Lyme Meet-up
2023-01-30 18:00 - 19:00 | Zoom Virtual Event
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Mothers Against Lyme Meet-Up
Are you raising a child with Lyme disease and feeling overwhelmed? Is this situation making you depressed, and in need of compassion, advice, and even some laughs? Then this group is for you. Click the link to sign up!
Learn more about Mother’s Against Lyme here!

Virtual Support Group: Milena Pastore - Healing Yoga for Limited Energy & Mobility
2023-02-05 14:00 - 16:30 | Meetup Virtual Event
Share this content: Join Colorado Lyme & TBD Support Group & Colorado Tick-Borne Disease Awareness Association as we welcome Milena Pastore from Soul Tribe Yoga Collective: Yoga designed exclusively for chronic illness survivors.
Milena is offering two separate and different intensity level virtual sessions on February 5, 2023. Please see below for times and descriptions:
Welcome to the Soul Tribe Yoga Collective! All are welcome in this virtual, healing space. Here is what you can expect from a yoga session with Milena.
Class Descriptions:
Level I: Healing Yoga for Very Limited Energy & Mobility – Coping with Difficult Days
Sunday, February 5, 2023, from 2-3 PM (MST)
This class is designed for students who are struggling with severe pain, exhaustion, balance and/or enhanced cognitive issues. This is a good option for those who may be limited to their beds or couch. Level I incorporates careful movements that are designed to gently awaken the body by generating subtle energy and blood flow. Gentle breathwork and soothing meditation will aid students in reducing stress and quieting the mind. The entire session will take place while sitting or lying down. Contraindications will be offered as needed.
Click here to register for the event through Meetup.com. Upon registration for this class, please provide your email address in the Meetup.com message window so that a liability waiver can be sent to you for you to review and sign off on prior to class.
Level II: Healing Yoga for Limited Energy & Mobility – Enhancing the Better Days
Sunday, February 5, 2023, from 3:30-4:30 PM (MST)
This very gentle class and is designed for students who are experiencing moderate pain, fatigue, and cognitive issues. This is a good option for those who have some mobility and range of motion with fair energy levels. Level II incorporates gentle movements and postures with peaceful breathwork and meditation techniques that are designed to awaken one’s inner healer as well as balance emotions and reduce stress. The session will include a mix of carefully selected postures that will be done while standing, sitting, and on our yoga mats. Contraindications will be offered as needed.
Click here to register for the event through Meetup.com. Upon registration for this class, please provide your email address in the Meetup.com message window so that a liability waiver can be sent to you for you to review and sign off on prior to class.
What to Bring:

Clothing: Please wear comfortable, loose-fitting clothing. Athletic apparel, lounge wear or pajamas will work great.
Yoga mat: A yoga mat will not be necessary for Level I students unless you choose to lie on the floor as opposed to your bed or couch. For Level II students, if you do not own a yoga mat, please bring a towel, or blanket that you can lie on for postures that we will be doing while situated on the floor.
Chair: Please have a sturdy, safe chair handy or set your computer up near a couch. We will do some of our exercises while seated. For Level I students, the entire session will take place either while lying down (on the floor, or in a bed) and/or seated in a chair or on a couch.
Extra towels, blankets and/or cushions: Feel free to bring along any of these types of items that can be used to support yourself in any way necessary throughout the session. These items can be used to bolster your head or any part of your body. You can also use a blanket or towel as a cover if you are feeling chilled. If you do not have any of these extra items, that is not a problem.
Water: Bring plenty of water and/or any other fluids that you rely on such as an herbal tea or electrolytes. It will be important to stay well-hydrated. As well, the work we will be doing to stimulate our bodies and minds can awaken deep-seated energy and emotions, often generating the release of toxins which will need to be flushed.
Snacks: Feel free to bring a light snack, or plan to enjoy one once we are finished, especially if you tend to experience low blood sugar. Nuts, trail mix, crackers, an energy bar or fruit are ideal options.
Speaker and/or Headphones: Your computer’s speakers will work just fine. If possible, I suggest hooking up to a good speaker for the session to enhance the experience. If you are comfortable doing so, you are also welcomed to use regular or Bluetooth headphones. Bluetooth headphones can be used for the entire session while headphones with a chord can be used during our final resting pose, where we will lie down and meditate in stillness.
Tissues: You may want to have a box of tissues handy to clear your nasal passages for the breathwork exercises, especially if you are congested. And, as mentioned earlier, sometimes emotions can be stirred up – including difficult ones. If tears well up and start to flow, that is absolutely okay.
Animal companions: All are welcome to these yoga sessions! You may find that your animal companions will be curious and eager to join in. They tend to be attracted to the healing and peaceful energy that we will be generating. They may want to participate in the experience and be present to support you.

Protocol:

Liability Waiver – The waivers will be distributed to all who register as we get closer to the event date. Each student will need to sign off on one prior to the start of class.
Quiet Space: It will be ideal if you can set up for our practice in a peaceful and quiet room. This is for your benefit as well as the group. For the Level II class, you’ll want an area with enough space to stretch out on your mat and move freely.
Turn off your microphone: Since we cannot always control the background noise that may occur in or around our homes, I will ask that everyone puts their microphones on mute. This is out of respect for one another, as well as to reduce internet bandwidth. If you have any questions or concerns during the session, I ask that you type them in the chat box, which I will be keeping a close eye on. Should any issues arise that require further discussion, I will ask you to then turn on your microphone so that we can do our best to find a solution.
Cellphones: Throughout the session I will ask that we all refrain from looking at or using our cell phones. Unless you are dealing with an emergency, I ask that we treat these sessions the same as we would if we were joining together in a studio space. This will help all of us to get the most out of our time together.
Visibility/Camera: It is up to you whether you feel comfortable to have your camera on or off. I would love to be able to see you throughout the entire session, as well as offer any necessary pointers. However, if you feel more comfortable with your camera off, that is also acceptable.
Privacy & Respect: We will be joining together as individuals from different backgrounds, situations, viewpoints, and beliefs. Battling with chronic illness makes us all uniquely vulnerable and sensitive, in our own distinct ways. It is important that we maintain open minds and treat one another with kindness and respect. I ask that we all do our best to practice mindfulness and self-awareness when it comes to our actions and words, ensuring they come from a place of non-judgement, love, and support.

This information is provided in an effort to help you best prepare. It may seem like a lot but please do not fret. These sessions are meant to be relaxed and inclusive to all participants. If you do not have the time or ability to adequately prepare in all of the ways mentioned above, you will still be able to achieve great healing and benefit simply by showing up. If you have any questions or concerns prior to the session, please do not hesitate to contact Milena at 719-480-4260 or milenapastore@gmail.com
Namaste,
Milena
Soul Tribe Yoga Collective
Read Milena’s Full Bio here *COTBDAA does not provide medical advice. Views and information shared by guest presenters and support group members is the sole responsibility of the individuals. Use of the COTBDAA site is for information only. Please consult your medical provider before making any decisions about diagnosis or treatment. COTBDAA does provide patient support and access to educational resources. Please do not hesitate to reach out!

Mothers Against Lyme Meetup
2023-02-20 18:00 - 19:00 | Zoom Virtual Event
Share this content: Mother Against Lyme is hosting their next virtual Support Group Meeting on Monday, February 20, 2023! 6:00 PM (MST), 8:00 PM (EST)
Join us for another Mother’s Meet Up! You are not alone! Please pass the meeting information along to anyone else who may benefit from joining us.
Register here
More from Mothers Against Lyme here

Moonlight Monday: COTBDAA Moonlight Pizza & BrewPub Fundraiser
2023-05-01 11:00 - 22:00 | Moonlight Pizza and BrewPub, 242 F St, Salida, CO, 81201, United States
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Great food…Great people…Great cause!
Join us May 1, 2023!
On Moonlight Monday, Moonlight Pizza and BrewPub donates 10% of their daily sales to community organizations.
May 1, 2023, COTBDAA is scheduled to be the grateful recipients of Moonlight Monday donations. This kicks off the beginning of Lyme & Other TBD/Conditions Awareness Month! Proclamations granted by Colorado Governor Jared Polis, Chaffee County, City of Salida & Town of Buena Vista!
Whether you chose to dine in or take out on May 1st….join us in “Biting Back” against Lyme & Other Tick-Borne Diseases/Conditions! Drop by the COTBDAA & Chaffee County Public Health tick-bite prevention education table for resources between 11am-1pm!
*Monies raised help support the community screenings of the full length feature documentary, The Quiet Epidemic at Salida Steam Plant Theater, Planned for May 5, 2023 & at the Buena Vista, Stardust Theater on May 10, 2023.
This alarming full feature documentary gets to the heart of the real impact of a long ignored epidemic, Lyme disease. The Salida screening will be followed by a discussion with a panel of experts to continue this very important community conversation.
You won’t want to miss the panel discussion following the film with the co-directors, Winslow Crane-Murdoch & Lindsay Keys Lyme literate doctors that care for patients, Dr. Julie Barter & Dr. Sharon Austin, and the advocates, caregivers and patients impacted. Details and RSVP at www.coloradoticks.org!
COTBDAA has been the grateful recipient of a Moonlight Monday donations in 2017, 2018 & 2019, 2020, 2021, 2022 and now 2023! Thank you Moonlight…and thank you to our community!

The Quiet Epidemic: Broomfield Auditorium
2023-05-03 16:00 - 20:00 | Broomfield Auditorium, 3 Community Park Road 80020, Broomfield, CO, 80020, United States
Share this content: THE QUIET EPIDEMIC-BROOMFIELD:
The Colorado Tick-Borne Disease Awareness Association, 501c3, is privileged to host the screening of The Quiet Epidemic, a feature-length documentary about Lyme disease. This film is both chilling and alarming, a motivation for change at the highest levels. The film will be immediately followed by an expert panel to continue this important community conversation. May 3, 2023, Broomfield, CO is the first stop on this film tour for Colorado!
ABOUT THE FILM:
After years of living with mysterious symptoms, a young girl from Brooklyn and a Duke University scientist are diagnosed with a disease said to not exist: Chronic Lyme disease.
The Quiet Epidemic follows their search for answers, which lands them in the middle of a vicious medical debate. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research, and buried documents reveals why ticks – and the diseases they carry – have been allowed to quietly spread around the globe.
According to a new CDC estimate, 476,000 people are diagnosed with Lyme disease yearly in the United States alone, yet our public health agencies and policymakers remain largely unresponsive. The same small group of doctors and public health officials have continued to control the science and the narrative of denial for decades. ‍We intend to change that. PANEL MEMBERS FOR BROOMFIELD SCREENING:
The film screening will be followed by a conversation with filmmakers Lindsay Keys and Winslow Crane-Murdoch, Dan Kinderlehrer, MD; Shawn Naylor, DO; Julie Barter, ND; and Sharon P. Austin, PsyD, as well as patients/advocates. Bring your questions to this panel of experts!
PURCHASE A TICKET:
Ticket prices include admission to the film as well as choice of Charcuterie box from Roots ($25), snacks only choice ($15), popcorn and a non-alcoholic beverage during the social hour. Please note we will close the sale of tickets with dinner on April 23rd. There will not be extra meals for purchase at the venue. If you are considering dinner option & have any questions please contact jaime@ravel.health. Purchasing the ticket with food is not required. A portion of the ticket sales will be donated to the Colorado Tick-Borne Disease Awareness Association, 501C3.
Purchase tickets at Eventbrite
DONATE A TICKET: Please consider donating the price of a ticket so we may offer the screening to someone who would like to join us but doesn’t have the resources. For those in need of a donated ticket please contact our Community Partner at jaime@ravel.health to reserve. We look forward to seeing everyone!
AGENDA:
4:00 -4:45 PM – Social hour/registration
5:00 – 6:30 PM – Film Screening
6:45 – 7:45 PM – Panel discussion The Quiet Epidemic Colorado Film Tour is generously sponsored by our Community Partners at Sawyer! We thank all of our 2023 Community Partners for their year-round support so that we may continue to bring these resources to CO!
Door prizes have been generously donated by our CO Film Tour Sponsor and Community Partners at Sawyer, and our Community Partners at Insect Shield!
Much thanks to our Community Partners at Ravel Health for their generous assistance with organizing and volunteering at this event!

The Quiet Epidemic: Salida Steam Plant Theater
2023-05-05 16:00 - 20:00 | Salida SteamPlant Theater, 220 W Sackett Ave., Salida, CO, 81201, United States
Share this content: THE QUIET EPIDEMIC-SALIDA:
The Colorado Tick-Borne Disease Awareness Association, 501c3; Chaffee County Public Health; and Partnership for Community Action are privileged to host the screening of The Quiet Epidemic, a feature-length documentary about Lyme disease. The film will be immediately followed by an expert panel conversation. May 5, 2023, Salida, CO is the second stop for this film tour in Colorado!
ABOUT THE FILM:
After years of living with mysterious symptoms, a young girl from Brooklyn and a Duke University scientist are diagnosed with a disease said to not exist: Chronic Lyme disease.
The Quiet Epidemic follows their search for answers, which lands them in the middle of a vicious medical debate. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research, and buried documents reveals why ticks – and the diseases they carry – have been allowed to quietly spread around the globe.
According to a new CDC estimate, 476,000 people are diagnosed with Lyme disease yearly in the United States alone, yet our public health agencies and policymakers remain largely unresponsive. The same small group of doctors and public health officials have continued to control the science and the narrative of denial for decades. ‍We intend to change that.
PANEL MEMBERS FOR SALIDA SCREENING:
The film screening will be followed by a conversation with The Quiet Epidemic filmmakers Lindsay Keys and Winslow Crane-Murdoch, as well as Julie Barter, ND; Sharon P. Austin, PsyD; Lyme patients, and advocates. Bring your questions to this panel of experts!
TICKET INFORMATION:
This Event is FREE for all to attend!
RSVP is requested for refreshment planning, please reserve your seat at Eventbrite
Snacks and refreshments are being provided by Chaffee County Public Health. Walk-ins welcome if space available at the door.
Partnership for Community Action will be dedicating Salida Soup May to COTBDAA in support of the screening of The Quiet Epidemic, as well as leading awareness events and activities throughout the month of May for Lyme & TBD/Conditions Awareness Month in our local community. Stay tuned for more details!
AGENDA:
4:00 -4:45 PM – Social hour/registration
5:00 – 6:45 PM – Film Screening
6:45 – 7:45 PM – Panel discussion
The Quiet Epidemic Colorado Film Tour generously sponsored by our Community Partners at Sawyer!
We thank all of our 2023 Community Partners for their year-round support so that we may continue to bring these resources to CO!
Door prizes have been generously donated by our Sponsor and Community Partners at Sawyer & Community Partners at Insect Shield!
Much thanks to Community Partners at Ravel Health for volunteering their time and talents for this event.

The Quiet Epidemic: Buena Vista Stardust Theater
2023-05-10 16:30 - 19:30 | Stardust Theater, 16450 Co Rd 306, Buena Vista, CO, 81211, United States
Share this content: THE QUIET EPIDEMIC-BUENA VISTA:
The Colorado Tick-Borne Disease Awareness Association, 501c3; Chaffee County Public Health; and Partnership for Community Action are privileged to host the screening of The Quiet Epidemic, a feature-length documentary about Lyme disease. The film will be immediately followed with a Q&A with local Health advocates. May 10, 2023, Buena Vista, CO is the third stop for this film tour in Colorado!
ABOUT THE FILM:
After years of living with mysterious symptoms, a young girl from Brooklyn and a Duke University scientist are diagnosed with a disease said to not exist: Chronic Lyme disease.
The Quiet Epidemic follows their search for answers, which lands them in the middle of a vicious medical debate. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research, and buried documents reveals why ticks – and the diseases they carry – have been allowed to quietly spread around the globe.
According to a new CDC estimate, 476,000 people are diagnosed with Lyme disease yearly in the United States alone, yet our public health agencies and policymakers remain largely unresponsive. The same small group of doctors and public health officials have continued to control the science and the narrative of denial for decades. ‍We intend to change that.
Q&A FOLLOWING SCREENING:
The film screening will be followed by local health advocates and patients. Bring your questions!
TICKET INFORMATION:
This event is FREE to everyone!
Click here: RSVP is requested through Eventbrite
Walk-ins welcome if space available at the door.
Partnership for Community Action will be dedicating Salida Soup May to COTBDAA in support of the screening of The Quiet Epidemic, as well as leading awareness events and activities throughout the month of May for Lyme & TBD/Conditions Awareness Month in our local community. Stay tuned for more details!
AGENDA:
4:30 -5:00 PM – Social hour/registration
5:00 – 6:45 PM – Film Screening
6:45 – 7:15 PM – Panel discussion
The Quiet Epidemic Colorado Film Tour generously sponsored by our Community Partners at Sawyer!
We thank all of our 2023 Community Partners for their year-round support so that we may continue to bring these resources to CO!
Door prizes have been generously donated by our Sponsor and Community Partners at Sawyer & Community Partners at Insect Shield!

The Quiet Epidemic - Telluride
2023-05-17 17:30 | Wilkinson Public Library, 100 W Pacific Ave., Telluride, CO, 81435, United States
Share this content: THE QUIET EPIDEMIC-TELLURIDE:
The Colorado Tick-Borne Disease Awareness Association, 501c3 and Wilkinson Public Library are privileged to host the screening of The Quiet Epidemic, a feature-length documentary about Lyme disease. The film will be immediately followed with a Q&A. May 17, 2023, Telluride, CO is the fourth stop for this film tour in Colorado! Link to Wilkinson Public Library
ABOUT THE FILM:
After years of living with mysterious symptoms, a young girl from Brooklyn and a Duke University scientist are diagnosed with a disease said to not exist: Chronic Lyme disease.
The Quiet Epidemic follows their search for answers, which lands them in the middle of a vicious medical debate. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research, and buried documents reveals why ticks – and the diseases they carry – have been allowed to quietly spread around the globe.
According to a new CDC estimate, 476,000 people are diagnosed with Lyme disease yearly in the United States alone, yet our public health agencies and policymakers remain largely unresponsive. The same small group of doctors and public health officials have continued to control the science and the narrative of denial for decades. ‍We intend to change that.
Watch the trailer to The Quiet Epidemic

Q&A FOLLOWING SCREENING:
The film screening will be followed by a Q&A. Bring your questions to this important community conversation!
EVENT INFORMATION:
This event is FREE to everyone! No tickets needed. Film begins at 5:30 pm!
The Quiet Epidemic Colorado Film Tour generously sponsored by our Community Partners at Sawyer!
We thank all of our 2023 Community Partners for their year-round support so that we may continue to bring these resources to CO!
Door prizes have been generously donated by our Sponsor and Community Partners at Sawyer & Community Partners at Insect Shield!

Salida Soup-Picnic
2023-05-18 18:00 - 19:30 | Alpine Park, 404 E St, Salida, CO, 81201, United States
Share this content: Thanks for hosting PfCA!
First Salida Soup Picnic on Thursday, May 18th in Alpine Park, starting at 6 p.m. Bring your own picnic dinner, some blankets and chairs, and enjoy a spring night in Salida!
Colorado Tick-Borne Disease Awareness Association will present about how they are educating & protecting our communities. Your donations will go toward COTBDAA Lyme & TBD/Conditions Awareness events and activities throughout the month of May!
Not a picnicking kind of person? No worries-Salida Soup will open up the Donor box for your donations that night! Watch and donate at salidasoup.org
In case of inclement weather, the Soup will be online-only

The Quiet Epidemic - Manitou Art Center
2023-06-17 17:00 - 19:00 | Manitou Art Center, 513 Manitou Ave, Manitou Springs, CO, 80829, United States
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This screening of THE QUIET EPIDEMIC is presented in partnership with Rocky Mountain Women’s Film.
Through Film in the Community, films are screened throughout the year, free of charge, at various locations around Colorado Springs. Join us June 17th, 5pm-7pm at the Manitou Art Center in partnership with the Rocky Mountain Women’s Film, to watch THE QUIET EPIDEMIC!
Film Description:
PLAY TRAILER
AFTER YEARS OF LIVING WITH MYSTERIOUS SYMPTOMS, a young girl from Brooklyn and a Duke University scientist are diagnosed with a disease said to not exist: Chronic Lyme disease. The Quiet Epidemic follows their search for answers, which lands them in the middle of a vicious medical debate. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research, and buried documents reveals why ticks—and the diseases they carry—have been allowed to quietly spread around the globe.
For more information and registration to attend this FREE screening:
Visit Rocky Mountain Women’s Film.

Film Screening and Community Conversation: The Quiet Epidemic - Centennial
2024-04-19 13:00 - 15:30, 2024-04-24 17:30 - 20:00 | Koelbel Library, 5955 S. Holly St. 80121, Centennial, CO, 80121
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Arapahoe Libraries is Hosting Film Screening and Community Conversation: The Quiet Epidemic
Join us for a community conversation and film screening of the award-winning documentary The Quiet Epidemic. The film features a young girl from Brooklyn and a scientist from Duke University both diagnosed with chronic Lyme disease, a disease said to not exist. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research and buried documents reveal why tick-borne diseases have been allowed to quietly spread around the globe.
A panel of subject matter experts will lead a community conversation following the film screening. Seating opens 30 minutes before the film starts. Light snacks will be served. This event is FREE, however Registration is required.
Register here
In partnership with Colorado Tick-Borne Disease Awareness Association. Resource table will be available with education and prevention information from COTBDAA as well as Community Partners: InsectShield, Sawyer, IGeneX, Ravel Heath & Soul Tribe Yoga Collective.

Film Screening and Community Conversation: The Quiet Epidemic - Steamboat Springs
2024-04-23 17:00 - 20:00 | Colorado Mountain College – Steamboat Springs Campus – Allbright Auditorium, 1275 Crawford Avenue, Steamboat Springs, CO, 80487, United States
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Colorado Tick-Borne Disease Awareness Association is Hosting Film Screening and Community Conversation: The Quiet Epidemic
Join us for a film screening and community conversation about the award-winning documentary The Quiet Epidemic. The film features a young girl from Brooklyn and a scientist from Duke University both diagnosed with chronic Lyme disease, a disease said to not exist. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research and buried documents reveal why tick-borne diseases have been allowed to quietly spread around the globe.
Subject matter experts will lead a community conversation/Q & A following the film screening.
This event is FREE and OPEN TO THE PUBLIC! The CMC student services program will be providing snacks and refreshments!
A resource table will be available with education and prevention information from COTBDAA, as well as Community Partners: InsectShield, Sawyer, IGeneX, Ravel Heath & Soul Tribe Yoga Collective
Door prizes will be given away and there is a special gift for all nursing program students and faculty!

BUT SHE LOOKS FINE: THE MUSICAL
2024-04-26 18:00 - 2024-04-30 18:00 | Abraham Lincoln High School Auditorium, 2285 S Federal Blvd. 80219, Denver, CO, 80219, United States
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ABOUT BUT SHE LOOKS FINE: THE MUSICAL

This musical is an adaptation of the true memoir by Colorado teenager Olivia Goodreau about her battle with Lyme Disease and her journey towards activism and advocacy. Olivia created a non-profit organization called the LivLyme Foundation, who ALHS DRAMA has partnered with to produce the first-ever adaptation of the memoir. ALHS DRAMA Director Danya Firestone, with help from students, adapted the memoir into a staged production; incorporating existing music to help tell Olivia’s story. Many young people and adults live with invisible illnesses; this show explores the journey of a young person navigating that challenge.
Esta musical es una adaptación del verdadero libro de la experiencia de adolescente de Colorado Olivia Goodreau sobre su batalla con la enfermedad de Lyme y su viaje hacia el activismo. Olivia creó una organización sin fines de lucro llamada la Fundación LivLyme, con la que ALHS DRAMA se ha asociado para producir la primera adaptación de su autobiografía. La directora de ALHS DRAMA, Danya Firestone, con la ayuda de sus estudiantes, adaptó el libro en una producción escenificada; incorporando música existente para ayudar a contar la historia de Olivia. Muchos jóvenes y adultos viven con enfermedades invisibles; este espectáculo explora el viaje de una persona joven que navega por ese desafío.
ABRAHAM LINCOLN HIGH SCHOOL

Lincoln High School, which opened its doors in 1960, is located within an urban working-class neighborhood in southwest Denver, six miles from downtown. Many of our students’ parents were born in other countries and many students will be the first in their families to graduate high school. Lincoln serves a primarily Latino student body, as well as students from Sudan, Somalia and Southeast Asia, to name a few. As Lincoln Lancer educators, we take pride in challenging the stereotype by empowering our newcomer and first-generation students to achieve success. We take great pride in providing a high level of service to our students, families and community.
Lincoln High School, que abrió sus puertas en 1960, se encuentra en un barrio urbano de clase trabajadora en el suroeste de Denver, a seis millas del centro de la ciudad. Muchos de los padres de nuestros estudiantes nacieron en otros países y muchos estudiantes serán los primeros en sus familias en graduarse de la escuela secundaria. Lincoln sirve a un cuerpo estudiantil principalmente latino, así como estudiantes de Sudán, Somalia y el sudeste asiático, por nombrar algunos. Como educadores de Lincoln Lancer, nos enorgullecemos de desafiar el estereotipo al empoderar a nuestros estudiantes recién llegados y de primera generación para lograr el éxito. Nos enorgullece proporcionar un alto nivel de servicio a nuestros estudiantes, familias y comunidad.
COTBDAA is happy to be providing an education and prevention resource table at performances, as well as auction items.
GET TICKETS HERE

FRI. APR 26TH 2024, 6:00 PM
SAT. APR 27TH 2024, 12:00 PM
MON. APR 29TH 2024, 4:00 PM
TUE. APR 30TH 2024, 6:00 PM

This venue offers accessible parking, is a wheelchair accessible venue, and offers wheelchair accessible seating.
The arts should be accessible to all. If you are in need of free tickets to see this show, please email alhsdramaprogram@gmail.com for a Promo Code. We look forward to having you at the show! Las artes deben ser accesibles para todos.
Si necesitas boletos gratuitos para ver este espectáculo, envíe un correo electrónico a alhsdramaprogram@gmail.com para obtener un código promocional. ¡Esperamos tenerte en el show!

Moonlight Monday- COTBDAA Awareness & Fundraiser
2024-05-06 11:00 - 21:00 | Moonlight Pizza and BrewPub, 242 F St, Salida, CO, 81201, United States
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Great food…Great people…Great cause!
Join us May 6, 2024!
On Moonlight Monday, Moonlight Pizza and Brewpub donates 10% of their daily sales to community organizations.
May 6, 2024, COTBDAA is scheduled to be the grateful recipients of Moonlight Monday donations.
This fundraiser is part of Lyme & Other TBD/Conditions Awareness Month! Proclamations by Chaffee County Commissioners and Colorado Governor, Jared Polis!
Whether you chose to dine in or take out on May 6th….join us in “Biting Back” against Lyme & Other Tick-Borne Diseases/Conditions! Following this kick-off event, community members and others are encouraged to donate directly to COTBDAA for the following two weeks!
Drop by our COTBDAA table on May 6th between 5-7 pm to pick up tick-bite prevention education for resources…and get your FREE (and really cool) tick-check reminder sticker for your water bottle or car! Also register for some amazing tick-bite prevention giveaways from our community partners!
*Monies raised help support Chaffee County community education and awareness resources and activities!
COTBDAA has been the grateful recipient of Moonlight Monday donations in 2017, 2018 & 2019, 2020, 2021, 2022, 2023, and now 2024! Thank you Moonlight for your ongoing support…and thank you to our community!

Film Screening and Community Conversation: The Quiet Epidemic – Buena Vista
2024-05-08 14:00 - 16:30 | Stardust Theater, 16450 Co Rd 306, Buena Vista, CO, 81211, United States
Share this content: Join us for a community conversation and film screening of the award-winning documentary The Quiet Epidemic. The film features a young girl from Brooklyn and a scientist from Duke University both diagnosed with chronic Lyme disease, a disease said to not exist. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research and buried documents reveal why tick-borne diseases have been allowed to quietly spread around the globe.
Monica White, President/Co-Founder of Colorado Tick-Borne Disease Awareness Association will be available for community conversation following the film screening. Light snacks will be served. This event is FREE! No registration necessary. Donations are accepted and free popcorn is served!
In collaboration with Chaffee County Public Health’s Age Strong Film Club! Colorado Tick-Borne Disease Awareness Association. Resource table will be available with education and prevention information from COTBDAA as well as Community Partners: InsectShield, Sawyer, IGeneX, Ravel Heath & Soul Tribe Yoga Collective.

May Lyme & TBD Awareness Month Meditation & Yoga!
2024-05-11 14:00 - 15:30 | Full Circle Yoga, 372 Main Street, Longmont, CO, 80501, United States
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Join Us for Lyme & Tick-Borne Diseases Awareness Month Events and Activities with Our Community Partners at Soul Tribe Yoga Collective!
Lyme Disease Awareness Month Meditation Challenge!
This challenge is meant to be attainable and accessible all, including those who are new to meditation. Join Milena from Soul Tribe Yoga Collective on Fridays at 11 AM (MT) to meditate together via Zoom. Each meditation lasts for 25 minutes including a 5-minute guided element followed by 20 minutes of silent meditation with guidance and support.
Lyme & tick-borne disease patients in all time zones, as well as their caregivers, friends, and family, are welcome to join this challenge. Donations in any amount are accepted however there is no cost to participate.
Malas for Lyme Disease Awareness Month!
Milena from Soul Tribe Yoga Collective is hand-making bespoke malas designed in the theme of Lyme Disease Awareness Month for tick-borne disease patients, caregivers, advocates, and other champions in the fight against Lyme disease. All proceeds benefit the Soul Tribe Yoga Scholarship Fund so students experiencing significant financial hardship can access community through yoga. Each mala is made with 108 beautiful gemstone beads complete with a unique guru bead and tassel and can be customized to your preferences. Cost of materials varies based on preferences, average $40.
May 11: Gentle Yoga Gathering, Virtual & In-Person
In collaboration with our community partners at Soul Tribe Yoga, we will gather on Saturday, May 11th at 2 PM (MT) for a gentle yoga practice. Don’t miss out on this special event! The class will be an All Levels Gentle Yoga Class with a focus on subtle postures, intentional movements, breathwork, and meditation.
Participants based in Northern Colorado are welcome to join the in-person element of this special donation-based yoga class at Full Circle Yoga in Longmont, CO. **Please note the studio has stairs. Community members based in other parts of the country/world or those without physical accessibility to the in-person event can join the session via Zoom. Suggested donation is $30, however donations in any amount will be accepted so that this special session is accessible to all.
A resource table will be available at the in-person location with education and prevention information from COTBDAA, as well as our Community Partners that support awareness, prevention, and patient support year-round: InsectShield, Sawyer, IGeneX, Ravel Heath & Soul Tribe Yoga Collective
For more information, registration for events, participation waivers, and mala ordering, please visit Soul Tribe Yoga Collective here. Milena is happy to answer any questions! milena@soultribeyc.com
(970) 444-2120
*ALL proceeds from the May Awareness activities benefit the Soul Tribe Yoga Scholarship Fund so that students with tick-borne diseases and conditions experiencing significant financial hardship can access community through yoga. *COTBDAA does not provide medical advice. Please consult your medical provider before making any decisions about diagnosis or treatment.

The Quiet Epidemic #MakeLymeLoud Campaign
2025-01-21 - 2025-01-31 | Virtual Event
Share this content:January 21-31: Let’s #MakeLymeLoud, 50 years after Lyme was first recognized in the U.S.
IT’S LIVE: #MakeLymeLoud Email Campaign Jan. 21 – 31!
We’ve entered a pivotal year for Lyme disease advocacy – 2025 marks 50 years since
Lyme disease was first recognized in the U.S. The Quiet Epidemic (TQE) impact team
has launched a community-wide outreach campaign to educate the new Administration.
From January 21 to 31, this #MakeLymeLoud campaign page will be LIVE with a
pre-written letter for President Trump. The goal is to inform him about the growing threat
of Lyme and tick-borne diseases and encourage support for key initiatives to prioritize
solving this public health crisis.
If you want to make an impact for Lyme disease, this is a quick, simple, and free way to
make your voice heard. With a change in administration and momentum from recent
TQE events on Capitol Hill, this opportunity won’t come again. We need all hands on
deck.
Now that the campaign page is live, you can:
1. Send a Letter to President Trump (< 60 seconds)
2. Share the Call to Action by encouraging your family, colleagues, and friends to send
a letter (5 min)
3. Stay Engaged by spending five minutes a day, for ten days, amplifying the campaign
and recruiting your community to do the same (50 min)
Beyond educating the new Administration, the goal is to unite and elevate the Lyme
community. With your help, we will #MakeLymeLoud in 2025 in partnership with
LymeLight Foundation, Global Lyme Alliance, Project Lyme, NatCapLyme, LymeLnk,
Center for Lyme Action, Bay Area Lyme Foundation, Mothers Against Lyme,
LymeDisease.org, Generation Lyme, Colorado Tick-Borne Disease Awareness Association, and 20 additional organizations
across the country.

Center for Lyme Action: Information Session for 2025 Virtual Lyme Fly-in
2025-01-22 15:00 - 16:00 | Virtual Event
Share this content:INFORMATION SESSION FOR 2025 VIRTUAL LYME FLY-IN
January 22, 2025 3:00PM MT
Join us for an informational session about the Center for Lyme Action 2025 Virtual Fly-In event! Our info session will cover everything you need to know about advocating for Lyme and tick-borne diseases with your members of Congress and their staff at our upcoming event. We will provide an overview of the Virtual Fly-In event followed by a Q&A.
The event will be recorded. Q&A questions may be submitted ahead of the event to info@centerforlymeaction.org Register here.

Tick-Borne Diseases & Associated Illnesses: National Community Engagement Initiative
2025-01-28 11:00 - 14:30 | Virtual Event
Share this content:Tick-Borne Disease and Associated Illnesses Virtual Community Engagement Session: Diagnosis: Spotlight on Special Populations
Date: January 28th, 2025
Time: 1:00 pm – 4:15 pm Eastern Time
Location: Virtual, register to attend
Draft Agenda: Available on https://www.hhs.gov/oidp/initiatives/tick-borne-diseases-associated-illnesses-national-community-engagement-initiative/index.html
Meeting Goal: Join us for an informative session designed to engage interested participants on the diagnostic challenges that special populations face with tick-borne diseases and associated illnesses (e.g., Alpha-gal Syndrome).
Meeting Objectives:

Validate the detrimental effects of missed or delayed diagnoses on the lives of patients and their loved ones.
Provide updates on new developments in diagnostic technologies.
Educate the audience about the nuances and obstacles of diagnosing tick-borne diseases and associated illnesses in special populations.
Furnish information to help healthcare providers recognize, diagnose, and promptly treat tick-borne diseases and associated illnesses, particularly in special populations.

* Please note that time may not allow for asking all questions individually. Frequently asked questions will be consolidated and asked as a single question.
For more information go to: https://www.hhs.gov/oidp/initiatives/tick-borne-diseases-associated-illnesses-national-community-engagement-initiative/index.html
For any questions regarding meeting logistics, please contact Maria Kowal at maria.kowal@roseliassociates.com
For any technical questions, please contact Mike Kavounis at mike.kavounis@roseliassociates.com

Center for Lyme Action 2025 Virtual Fly-In
2025-02-18 - 2025-02-19 | Zoom Virtual Event
Share this content:On February 18-19, 2025 Center for Lyme Action will host its annual Virtual Fly-In to connect advocates with their Members of Congress. Last year more than 400 advocates registered for more than 250 meetings with Congress Members.
REGISTER HERE!
A fly-in is an advocacy event where participants from across the United States meet with the DC staff of their elected Representatives and Senators to advocate for increases in federal funding for Lyme disease. Occasionally the Members make themselves available for the meetings. In addition to the Fly-in meetings we will hold a preparation session and a training session. See the agendas below.
AGENDA
Tuesday February 18, 2025
3:00pm ET – 5:00pm ET

Introductions and Agenda
Remarks from U.S. Representatives and U.S. Senators
Lyme Appropriations Requests Review
Online Platform Logistics Overview
Expert Panel Remarks
Lyme Champion Awards

Wednesday February 19, 2025
9:00am – 5:00pm ET

Virtual Fly-in Meetings with Congress Members
All meetings will be scheduled to accommodate time zones.
Each attendee will be scheduled on average 3 30-minutes meetings.

TRAININGS
Monday February 10, 2025
8:00 – 9:00pm ET / 5:00 – 6:00pm PT
Storytelling Workshop for advocates

Hosted by Generation Lyme
Optional workshop for all advocates
Learn to share effective personal stories

Wednesday February 12, 2025
3:00pm ET – 4:30pm ET / 12:00pm PT – 1:30pm PT
Fly-in 101 Training for new advocates and those who would like additional training

Talking Points for FY26 Appropriations and Legislation
Online Platform Logistics Overview
Essentials for Effective Advocacy
Practice Session and Role Play
Additional Preparation Steps

Thursday February 13, 2024
4:00pm ET – 5:00pm ET / 1:00pm PT – 2:00pm PT
Fast Track Training for experienced advocates

Talking Points for FY26 Appropriations and Legislation
Online Platform Logistics Overview
Essentials for Effective Advocacy
Practice Session and Role Play
Additional Preparation Steps

Thursday February 13, 2025
8:00pm ET – 9:00pm ET / 5:00pm PT – 6:00pm PT
Provider Training for healthcare providers

Talking Points for FY26 Appropriations and Legislation
Online Platform Logistics Overview
Essentials for Effective Advocacy
Practice Session and Role Play
Additional Preparation Steps

Center for Lyme Action Congressional Series
2025-05-06 08:00 - 17:00 | Dirksen Senate Office Building, G50 Dirksen Senate Office Building, Washington, DC, 20002, United States
Share this content:Lyme, Alpha-gal Syndrome, and other tick-borne diseases continue to pose serious public health challenges across the United States. Accurate and timely diagnostics are critical for effective treatment and prevention of long-term illness. This event will feature expert speakers who will provide key insights into the current state of diagnostic testing, emerging technologies, and policy opportunities to improve patient outcomes.
Event Details:
Topic: The Future of Lyme and Tick-borne Disease Diagnostics
Date: May 21, 2025
Time: 5:00 PM ET – 7:30 PM ET
Location: Senate Dirksen Office Building G50
Register Here
Register to Meet with Representatives (Optional)
Agenda:

Welcome
Opening Remarks by U.S. Senator Susan Collins (Maine)
Keynote: State of Lyme Disease Diagnostics Research – Nicole Bell, CEO Galaxy Diagnostics
Expert Panel: LymeX Phase IV finalists
Brandon Jutras, PhD, Associate Professor, Northwestern University
Mark Junewicz, Founder and CEO, Gnomx
Mary Ann Communale, EdD, MS, Associate Professor, Drexel University College of Medicine
Nicole Bell, CEO, Galaxy Diagnostics
Reception 6:30 – 7:30

This briefing will provide valuable information for policy staff working on health, science, appropriations, or related issues. Light refreshments will be provided.
