Books & Films

Books

When your Child has Lyme Disease: A Parents’ Survival Guide

This book by Sandra Berenbaum, LCSW and Dorothy Kupcha Leland is filled with valuable information that parents need to know about Lyme, as well as practical strategies based on the authors’ personal and professional experiences.. Lyme disease can cause puzzling symptoms in children, including pain, fatigue, gastrointestinal upsets, learning disabilities, behavioral issues and psychiatric problems. The illness can be hard to diagnose, however, and Lyme-related controversies in the medical world complicate the picture. Parents seeking help for their suffering children often don’t know where to turn. This book offers guidance on finding the right medical care, coping with treatment, developing effective boundaries with others who don’t understand what your family is going through, advocating for your child’s educational needs and managing day-to-day family life. Finalist for the Eric Hoffer Award for Excellence in Independent Publishing. So wish this resource had been available when our children were diagnosed! Further resources available at www.facebook.com/WhenYourChildHasLyme


Lyme: The First Epidemic of Climate Change

Author Mary Beth Pfeiffer shows ticks climbing mountains and crossing borders as temperatures rise, forests are fragmented, and species lost. Documents the human contribution to the dangerous spread of Lyme disease to dozens of countries and multitudes of people. But just as important, Pfeiffer challenges medical dogma that has dictated care for two decades and which holds, wrongly, that Lyme disease is straightforward to diagnose and treat. “Lyme” is firmly rooted in environmental and health science, relying on more than 300 peer-reviewed articles and dozens of expert interviews. Pfeiffer exposes the failure of government and medicine to prevent rapidly spreading infection, address poor diagnostic tests, and help many thousands of patients whose symptoms — body pain, crippling fatigue, and neurological, psychiatric, and memory issues — can linger long after treatment. She gives voice to patients whose illnesses have been dismissed, to doctors whose treatments have put their licenses in jeopardy, and to scientists whose studies strongly suggest the threat of ticks and Lyme disease has been underestimated and methods to treat it inadequate. “Lyme” is an impeccably researched account of an enigmatic disease that makes a powerful case for action to combat ticks, address the pain of patients, and recognize humanity’s role in creating an epidemic. Island Press, April 2018, Pre-order: http://amzn.to/2iXup1u


Lyme Madness

Author Lori Dennis, provides a platform for the many voices of chronic Lyme sufferers, caregivers, and activists, along with the very few doctors and politicians all fighting for awareness, support and justice around the globe. Chronic Lyme disease is a complicated, confusing, and terrifying abyss—a black hole of human suffering, conflicting views, widespread corruption, and unrelenting medical navigation. Lyme Madness chronicles the author’s and adult son’s medical odyssey while capturing the current landscape of immeasurable suffering, twisted politics and medical madness that ensues worldwide.


In the Crucible of Chronic Lyme Disease

This book is written by Dr. Kenneth Liegner, MD (2015). Following completion of his medical training and a one-year stint as attending physician on Howard Champion’s Surgical Critical Care Service and MedStar Unit at Washington Hospital Center in the District of Columbia, Kenneth Liegner, M.D. returned to Westchester County, home of his Alma Mater, New York Medical College, to start a private practice. Unwittingly, he had ‘plunked himself down’ in the heart of a burgeoning epidemic of Lyme disease. His patients confronted him with puzzling syndromes that defied ‘tidy’ formulations of the illness and thrust him in to a Maelstrom of medical controversy. One practitioner’s work over 25 years is presented here along with correspondence with many principals in the field. Documentational in nature and not written as a narrative, the materials, nonetheless, convey the intensity of the struggle to characterize the nature of Lyme disease and the desperate fight for proper diagnosis and treatment upon the outcome of which patients’ very lives depended.


Little Bite Big Trouble: A Bird’s Eye View of Lyme Disease

Author Sarah Schlichte Sanchez tells the story of a family with Lyme. Mamma Bird is so happy to finally have a family. But a mysterious illness is taking away her strength and stamina.This winsome story affirms the challenges to parenting with a chronic illness, specifically Lyme disease. It also educates children and gives them a deeper understanding of invisible disabilities.

 


Cure Unknown: Inside the Lyme Epidemic

This book is written by Pamela Weintraub (2nd edition, 2013), a science journalist who specializes in health, biomedicine and psychology. Pam is senior editor at Discover magazine. She has excellent credentials in science and investigative journalism with 16 previous books to her credit. This is an incredible book, which not only chronicles the lives of several families stricken with Lyme disease, but also tracks the history which has led to the medical and political dilemmas that exist today.


Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease  & How Can I Get Better? An Action Plan for Treating Resistant Lyme and Chronic Disease

These books written by the internationally recognized Lyme disease expert, Dr. Richard Horowitz, MD (2013 and 2016) look at factors that can complicate Lyme disease diagnosis and treatment and offers a new way of looking at and treating chronic illness.

 


Gone in a Heartbeat: A Physician’s Search for True Healing

Dr. Neil Spector describes in great detail how he was misdiagnosed and, despite being a medical insider, was often discounted by his fellow physicians.  He encourages readers to never surrender their power to a third party and advocates for educated patients who can make informed decisions collaboratively and not simply follow instructions.

 


The Widening Circle: A Lyme Disease Pioneer Tells Her Story

Polly Murray tells her story from the viewpoint of a patient who was a pioneer in the medical recognition of Lyme disease. Her personal investigation into the cause of her family’s illness, eventually initiated a medical investigation that led to the 1982 discovery by Dr. Willy Burgdorfer of the dangerous bacteria that causes Lyme disease. Unfortunately, almost 40 years later, Lyme disease remains a poorly diagnosed, controversial illness.


The Lyme Disease Survival Guide

Written by former Coloradan, Connie Strasheim. This book is an incredible resource, offering valuable tools on how to navigate through all aspects of Lyme disease.

 


Lyme Disease Update: Science, Policy and Law

This book by Marcus A. Cohen is published by the Lyme Disease Association, written by a journalist and columnist for the Townsend Letter for Physicians & Patients, this book provides a comprehensive understanding of the scientific and political issues involved in the struggle for patient care that has been going on for two decades. NY Times bestselling author Amy Tan wrote the preface, describing her personal perspective on the difficulty getting diagnosed and appropriately treated for Lyme. The forward was written by Brian Fallon, MD, director of the Columbia Lyme and Tick-Borne Disease Research Center.


Lyme Disease is No Fun: Let’s Get Well!

This book is written by Mary Wall MS Ed, CCLS, a Columbia graduate student, and edited by Colleen M. Smith, a peer-review medical journal production editor and Johns Hopkins graduate. Each of these woman has battled Lyme disease as a child. Author Amy Tan has written the back cover note. It is published by Lyme Disease Association, Inc., national leaders in Lyme research, education, prevention and patient support. It is a resource written in language that conveys the experience of chronic Lyme disease to children ages 8–12.


Ending Denial: The Lyme Disease Epidemic, a Canadian Public Health Disaster

A call for action from patients, doctors, researchers and politicians. edited by Helke Ferrie. This book is about the incomprehensible failure of our governments and our medical education system to deal rationally with emerging infectious disease. An incredible source of information whether you live in Canada or the US.


Lyme Disease: The Ecology of a Complex System

Written by Dr. Rick Otsfeld, a senior Scientist at the Cary Institute of Ecosystem Studies in Millbrook, NewYork. Dr. Otsfeld’s research has resulted in over 150 scientific publications. This book demonstrates the complexities of ecology and its role in public health and human pathogens. Dr. Otsfeld identifies Lyme disease as a model for understanding many other emerging infectious human and animal diseases.


Films

Recordings from Lyme & Other Tick-Borne Diseases: 1st Rocky Mountain Forum

Held on May 7, 2016 at the American Mountaineering Center in Golden, Colorado, this event was sponsored by the Lyme Disease Association, Inc. (LDA) and hosted by the Colorado Tick-Borne Disease Awareness Association (COTBDAA), formerly the group Biting Back: Elevating Tick Awareness in Colorado (Monica White and Nancy Wrigley). Listen to Drs. Daniel Cameron and David Martz discuss Lyme disease diagnosis and treatment and what it’s personally like to have Lyme, respectively. LDA President Pat Smith provides a nationwide overview of Lyme & TBDs, now about 20, in the US; Toni Toelle, a Federal Agency Colorado firefighter presents TBD from her perspective; and President of COTBDAA, Monica White, talks about tick-borne diseases in Colorado. https://www.youtube.com/playlist?list=PLxRaIwc57w2nY4CzPLl9dm4hyLnaCg2GX


“Under our Skin” and “Under Our Skin 2: Emergence”

 “Under Our Skin” is an award winning documentary film released in 2008, “Under Our Skin 2: Emergence” is a sequel released in 2014. Both films chronicle the lives of chronic Lyme patients through their journey to recovery. In addition, it tells the story of the politics of Lyme, through the eyes of the very talented team of filmmakers at Open Eye Pictures, who left no stone unturned to uncover the truth. The first film can be viewed online at http://topdocumentaryfilms.com/under-our-skin/, the second film may be purchased at www.underourskin.com.


“LymeLight”

This is a Lyme Disease awareness film that serves as an inspirational story for those who have fought to overcome chronic illness and physical setbacks. It delivers a powerful message of the importance of living a healthy, active lifestyle on a daily basis. Angeli VanLaanen is one of the top female freeskiers in the world, as well as an Olympic athlete with expertise in all areas of her sport.  LymeLight is a 30 minute documentary film based on Angeli VanLaanen’s battle with Lyme Disease. Angeli, started showing Lyme symptoms at the tender age of 10. After developing a chronic sinus infection, fainting spells, dyslexia and fatigue, Angeli faced over a decade of misdiagnoses.

LymeLight – The Story Of Professional Freeskier Angeli VanLaanen Living With Lyme Disease from NEU PRODUCTIONS on Vimeo.


“Hidden in the Leaves”

Directed by award-winning filmmaker Mary Healey Jamiel, “Hidden in the Leaves” is the story of University of Rhode Island entomologist Thomas Mather and his team’s efforts to help people see the risks for serious tick-transmitted disease lurking in an increasing number of rural, suburban and semi-urban landscapes in the eastern United States. Free viewing of additional parts or purchase at University of Rhode Island TickEncounter Resource Center