Advocates have been working for many years in Colorado to support those affected by Lyme and other tick-borne diseases, and they continue to care deeply about the diagnosis, treatment, support and experience of Coloradans with tick-borne diseases.
COTBDAA is meant to be a source of information and support for Coloradans in both preventing and coping with Lyme and other tick-borne diseases. Our goal is to be apolitical, collaborative, science and evidence-based, and patient oriented. We hope to work in an environment of mutual respect, and facilitate dialogue and collaboration with Colorado’s health care providers and medical institutions.
That being said, we cannot ignore the lack of resources in Colorado, or the national controversy about treatment that impacts so many Coloradans struggling with health problems related to Lyme and tick-borne diseases in our State.
We acknowledge there is a need for change. We hope the conversation can be focused on ways to help Coloradans and others throughout the Rocky Mountain Region, and believe the ongoing debate about Lyme disease treatment and research does not adequately address the experience of the Rocky Mountain region residents who are suffering.
We hope to increase collaboration between patients, medical providers, researchers, and policy makers with the goal of creating an environment where all Colorado residents feel supported, and have access to correct and timely diagnosis and effective treatments for tick-borne diseases.
National Lyme Advocacy Groups
Lyme Disease Association
The Lyme Disease Association (LDA) supported the founding of COTBDAA with helpful advice and an annual scholarship to the scientific conference they host with Columbia University. LDA has provided education grants annually in support of COTBDAA’s Rocky Mountain Forum and prevention education booths. COTBDAA is honored to be an official affiliate of the LDANet.
Lymedisease.org is the foremost patient-centered tick-borne disease organization in the United States. Their research project My Lyme Data is providing information that will help guide future Lyme disease treatment and research. Their publication The Lyme Times is a resource for a variety of information about tick-borne diseases.
The International Lyme and Associated Diseases Society (ILADS)
ILADS is a nonprofit, international, multidisciplinary medical society dedicated to the appropriate diagnosis and treatment of Lyme and associated diseases. ILADS promotes understanding of Lyme and associated diseases through research, education and policy, and supports physicians, scientists, researchers and other healthcare professionals dedicated to advancing the standard of care for Lyme and associated diseases.
Global Lyme Alliance
The Global Lyme Alliance supports research that contributes to better understanding and treatment of Lyme disease, and developed an online prevention curriculum and resources to teach young people how to prevent tick-borne diseases.
LivLyme Foundation supports the work of researchers and scientists who are dedicated to finding the effective treatment for Lyme disease and ultimately finding the cure. LivLyme Foundation also provides assistance to children and their families struggling with Lyme Disease through education and funding.