Those impacted by the effects of Lyme and other tick-borne diseases are often faced with a lack of understanding and support. This may come from friends, family, co-workers, or physicians that don’t understand the complexities or the impacts that many of these illness may have on an individual or family. This lack of understanding makes an already difficult illness even harder to cope with. Below we provide avenues for patients or caregivers throughout Colorado to reach out to others regarding questions or concerns as well as providing places for social and emotional support. Though the understanding regarding Lyme and tick-borne diseases in Colorado may be limited…you are not alone here!
Please keep in mind that it is the individual’s responsibility to check out the support groups policies, philosophy and affiliations, COTBDAA provides the group links as a source of resource, but all information shared is that of the individual participating not that of COTBDAA. Medical decisions should always be made between you and your physician.
Colorado Lyme & TBD Support Group
This group is designed to share experiences as well as provide support and acceptance to everyone on their journey to recovery. Their goal is to offer a safe place where people can feel accepted, supported, heard, and loved. We offer 4 different meetup locations in the Denver Metro Area including South Denver (Englewood), North West (Lafayette), Central Denver (Lakewood), and Colorado Springs. Visit the Meet Up Page at www.meetup.com/Colorado-Lyme-TBD-support-group They also offer a Facebook support group for those sick with Lyme and other tick-borne diseases to share openly in a supportive environment. This is a closed group for private communications among members. To join please send request to Billie Shellist at BillieShellist@gmail.com.
Military Lyme Support®
Founded in 2002 by a USAF Spouse who found it impossible to get adequate treatment for Lyme and Co-infections at her local Military Treatment Facility. This site is a source for information and emotional support for ALL Members of the Armed Forces: Veterans, Active Duty, Reserve, Family and Caregivers. Military Lyme Support empowers our Members to get the cutting-edge treatment they need to overcome their illnesses via the ILADS Treatment Guidelines. Doctor referrals, VA, MTF and Tricare advice is also provided.Confidential assistance available.
LDO offers links to support groups for patients in Colorado and nationwide. Join with others in your own state to bring change through education, advocacy and activism. Share with people who will understand your story. Ask for help, find a doctor, tell people about events. The Lyme disease state sites are moderated by volunteers. They can help you find resources, answer questions, and tell you about local events. LymeDisease.org sends the state groups action alerts and updates on national issues. Visit www.lymedisease.org
LDO also hosts the MyLymeData database which was created by patients, for patients!
LymeVoice Fight. Heal. Live.
Sarah Schlichte Sanchez and her husband Aaron host the Lyme Voice Podcast aimed at encouraging, coaching and empowering household living with chronic illnesses. Visit www.lymevoice.com
Biting Back: Colorado Lyme Kids and Families
This is a community page created by Monica White prior to the establishment of Colorado Tick-Borne Disease Awareness Association. It is open to everyone looking for helpful information specifically regarding Colorado kids and families coping with Lyme and other tick-borne diseases. Visit www.facebook.com/BitingBackColoradoLymeKids
Northwest Colorado Lyme Support Group
Hosted by Liz Kirt, this is a place for those struggling with Lyme in Northwest Colorado to listen, talk, learn and heal. This group provides monthly meetings in Steamboat Springs, an online support Group through Yahoo and a Lyme Blog. To participate or locate more information visit www.nwcoloradolymesupport.org
Colorado Lyme & Associated Illnesses
Hosted by Courtney Taft. This is a closed group for private communications among members.
A collection of experiences from people with Lyme and Tick-Borne Disease created by Taylor Skye Schwabe. An opportunity to share your story and view others. A beautiful and heart wrenching compilation of those whose lives have been impacted by Lyme. Visit www.lymelightstories.com