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Research Study Recruitment: Congenital Lyme Disease

December 31, 2023
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Blog, Lyme Disease, Resources For Parents & Children, Resources For Patients, Resources For Providers

[vc_row][vc_column][vc_column_text] Pregnant participants needed for study! Children’s National Hospital – Congenital Infection Program has launched a pilot study being led by Sarah Mulkey, MD, PhD, “Pregnancy and Early Neurodevelopmental Outcomes Following In Utero Lyme Disease Exposure.” [perfectpullquote align="left" bordertop="false" cite="" link="" color="" class="" size=""]The study is actively recruiting pregnant volunteers to participate in questionnaires, one fetal MRI and ultrasound, one infant MRI and ultrasound, two in-person neurology evaluations, and two blood draws.[/perfectpullquote] This study will assess the feasibility of evaluation for outcomes of pregnancies of women affected by Lyme disease infection. Brain development of fetuses, infants, and children exposed to Lyme disease in utero will be assessed. Infants will be followed from birth to age 18 months.       Study participants will be reimbursed for their travel up to 230 miles each...

May 2023: CO Governor Polis Proclamation for Lyme & Other TBD Awareness Month!

April 14, 2023
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Blog

[vc_row][vc_column][vc_column_text]Colorado Governor, Jared Polis, signed a proclamation of Lyme & Other Tick-Borne Disease/Conditions Awareness Month for May, 2023! In addition, Chaffee County, the City of Salida, and the Town of Buena Vista, all at the heart of the Rocky Mountains, have made proclamations for the month of May. Consider asking your local community to do the same! As the distribution and prevalence of ticks and tick-borne diseases continues to increase at a national level…so must awareness! Colorado is home to a growing number of people that have been infected by Lyme and/or other tick-borne diseases or affected by tick-bite related conditions. Coloradan are at risk for tick bites depending on where they live, work or recreate, as well as from travel throughout the United States and the...

CO’s Governor Polis Proclamation for May 2022: Lyme & TBD Awareness Month!

April 30, 2022
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Blog

[vc_row][vc_column][vc_column_text] Colorado Governor, Jared Polis, proclaims Lyme and Other Tick-Borne Diseases/Conditions Awareness Month for the month of May, 2022! In this continuing era of COVID-19, prevention and recognition of Lyme and other tick-borne diseases/conditions is even more critical. As the distribution and prevalence of ticks and tick-borne diseases continues to increase at a national level…so must awareness! Though Colorado is considered by the Centers for Disease Control (CDC) and Colorado Department of Public Health and Environment(CDPHE) as a “low or no incidence” state for several TBDs, we are unfortunately home to a growing number of people and pets that have been infected by Lyme and/or other tick-borne diseases and conditions. Patients have been infected with tick-borne pathogens from here in Colorado,  as well as through exposures during travel throughout the United...

Connecting ~ Learning ~ Healing 2nd Annual Event Recordings

May 26, 2021
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[vc_row][vc_column][vc_column_text] May 2021: Connecting~Learning~Healing Virtual Event Recordings The 2nd annual “Connecting~Learning~Healing”  2-day virtual event was held in partnership with Colorado Lyme & TBD Support group on May 22 & 23 20121. Experts in the field of Lyme & other TBD diagnosis and treatment presented on day one which included Dr. Kenneth Liegner. Due to unforeseen circumstances Dr. Jill Carnahan was unable to present in person, but her pre recorded presentation is provided below. We rounded out day two with the exceptional motivational speaker and advocate, Col. Nicole Malachowski. Day 1 Recordings may be viewed here. Dr. Kenneth Liegner: Disulfiram in the Treatment of Lyme Disease & Babesiosis: First 3 years’ Experience in One Medical Practice Dr. Burrascano: "Tick-Borne Diseases- Latest Advancements in Testing" Day 2 Recording may be viewed here. Col. Nicole Malachowski:...

Governor Polis Proclaims May as Lyme & Other Tick-Borne Disease Awareness Month in Colorado!

April 30, 2021
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Blog

[vc_row][vc_column][vc_column_text]Thank you Governor Polis! Colorado Governor, Jared Polis, has signed a proclamation for Lyme and Other Tick-Borne Disease Awareness Month for May, 2021! In this era of COVID-19, prevention and recognition of Lyme and other tick-borne diseases/conditions is even more critical. As the distribution and prevalence of ticks and tick-borne diseases continues to increase at a national level…so must awareness! Though Colorado is widely considered a “low incidence” state,  we are home to a growing number of people that have been infected by Lyme and/or other tick-borne diseases here in Colorado, and from travel throughout the United States and the world. Human Lyme cases reported to the CDC in 2019 for Colorado were an all time high and a growing number of patients are living with debilitating symptoms...

Connecting ~ Learning ~ Healing: Virtual Event

March 20, 2021
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Blog

[vc_row][vc_column][vc_column_text] May 2021: Connecting~Learning~Healing Virtual Event In partnership with Colorado Lyme & TBD Support group, we are promoting May Lyme & Tick-Borne Disease Awareness month with our second annual "Connecting~Learning~Healing"  2-day virtual event. We are honored to host three experts in the field of Lyme & other TBD diagnosis and treatment: Dr. Jill Carnahan, Dr. Kenneth Liegner, and Dr. Joseph Burrascano, as well as exceptional motivational speaker and advocate, Col. Nicole Malachowski. Join us for each of these informative presentations with ample opportunity for questions and answers! This virtual event is FREE to attend, however space is limited and registration is required. You may register for one or both days. Register early for the event: Day 1 Registration Day 2 Registration Note: Due to unforeseen circumstances, Dr. Jill Carnahans' talk will be a...

one little bite

February 26, 2021
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Blog

[vc_row][vc_column][vc_column_text] [caption id="attachment_7500" align="alignright" width="300"] Monica White, President/Co-Founder of COTBDAA[/caption] one little bite "one little bite" is a video short that was produced by Monica White, COTBDAA Co-founder/President, in a storytelling workshop hosted by Chaffee County Public Health. This video short debuted last night alongside other powerful stories of resilience produced by adult and youth members of Chaffee County. This is a story about one person, one family, whose lives were forever changed by the bite of a tick. Though presentation of this story may be unique, the theme of the story is a common thread weaved into the stories of hundreds of thousands of people across the US and throughout the world that have been infected by Lyme and other tick-borne diseases. "Everyone has a story. A story that...

We Are Chaffee-Stories of Resilience

February 21, 2021
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[vc_row][vc_column][vc_column_text] Join COTBDAA President, Monica White, and fellow Chaffee County community members for the virtual "Dinner & a Movie" event hosted by We Are Chaffee on February 25th at 6:00 pm. This event presents a series of video shorts and introduction of local storytellers including local youth voices sharing their stories about resilience. Plus be the first to see the new video montage highlighting local voices that introduce us to the new We Are Chaffee initiative. Registration is open and the first 100 registrants will be receive dinner from a local restaurant on us! Or choose to donate to the Chaffee County Community Foundation Emergency Response Fund. ​Unfortunately, dinner is sold-out but you can still join for the free movie event. Visit the "We are Chaffee" website to register here! [/vc_column_text][/vc_column][/vc_row]...

Center for Lyme Action Virtual Lyme DC Fly-In: 2021

February 21, 2021
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[vc_row][vc_column][vc_column_text] [caption id="attachment_7832" align="alignleft" width="243"] Center for Lyme Action 2020 DC Fly-in, Colorado Advocates: Monica White, Col. Nicole Malachowski, Olivia Goodreau, Holiday Goodreau, Dr. Heather Szerlong[/caption] COTBDAA President, Monica White will be again be joining other advocates from from across the United States for the 2021 Center for Lyme Action's Virtual Lyme Fly-in on February 23 & 24th. Colorado advocates will be meeting with DC staff of their elected Representatives and Senators to advocate for increases in federal funding for Lyme disease. Advocacy efforts last year resulted in a 65%  increase in Federal funding for Lyme disease. For more on Center for Lyme Action activities visit here. For more on advocacy efforts visit here.[/vc_column_text][/vc_column][/vc_row]...

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